Level of Competence & Importance in Daily Living of Mothers of Children with Disability: a cross-sectional study.

Abstract

Background: Mothers play a central role in caregiving for her child's well-being. Their daily living provides understanding of the intricate demands and coping strategies within the context of raising a child with a disability. The researcher included in the study Cerebral Palsy, Autism Spectrum Disorder, Attention Deficit Hyperactive Disorder and Down syndrome. The study focused on the mothers of the children with disability faced challenges to maintain time for their own self-care, productive works and leisure. Aim: The study aimed to find out the level of competence and importance in daily living activities of the mothers of children with disability. Methods: The study followed a cross-sectional quantitative study design by conducting face-to-face survey using purposive sampling among 202 participants who were the mother of child who taking treatment in rehabilitation center and therapy center through standardized questionnaire Occupational Self-Assessment-Daily Living Scale (OSA-DLS). Descriptive analysis was used by SPSS 20 version to analyze the data. The Mann Whitney U test and Kruskal wallis test was used to test the association of socio-demographic factors with competence and importance. Results: The score of competence was median (IQR) = 26.00 21.00 median (IQR) = 26.00 21.00 median (IQR) = 26.00 21.00median (IQR) = 26.00 21.00median (IQR) = 26.00 21.00 median (IQR) = 26.00 21.00median (IQR) = 26.00 21.00median (IQR) = 26.00 21.00 median (IQR) = 26.00 21.00 median (IQR) = 26.00 21.00-30.00) 30.00) which indicated high level of competence in daily living of participants according to OSA-DLS. The score of importance was median (IQR) median (IQR) median (IQR)median (IQR)median (IQR) median (IQR) = 27.00 (23.00= 27.00 (23.00= 27.00 (23.00 = 27.00 (23.00 = 27.00 (23.00- 33.00) 33.00) which indicates high level of importance in daily living of participants. There was a significant association between competence and living area, educational level, age of child, diagnosis of child, number of children with disability and monthly income. Conclusion: The study find out the higher level of competence and importance of the mother of children with disability. The study also contributes to a gross understanding of the status of socio-demographic and mother of children with disability. This study helps Occupational therapist to promote the mothers' daily living in managing with children with disability. Keywords: Mother of Children with disability, Daily living, Occupational therapy, Level, Competence, Importance.