Experiences of Family Caregivers among Individuals with Dementia

Abstract

Background: Dementia is a syndrome of deterioration in memory, thinking, behavior, and the ability to perform everyday activities. There is very little research on family caregiver experiences among individuals with dementia. This study explores the experiences of family caregivers among individuals with dementia. Aim: The aim of the study was to explore the experiences of family caregivers among individuals with Dementia. Methods: This study was designed using a qualitative, phenomenological approach. Participants were recruited from the National Institute of Mental Health and Hospital. Data gathered from eight family caregivers among individuals with Dementia involved conducting in-depth face-to-face interviews using semi-structured interview guidelines between the ages of 21 and 50. They were patients’ daughters, sons, wives, husbands, and daughters-in-law. The sample size was based on achieving data saturation. The study employed audio-recording techniques to capture first-person narratives in Bangla, which were transcribed and translated into English. The present study integrated thematic analysis, utilizing Braun and Clark's six-step approach. Result: This study emerged with eight main themes from data analysis. These were the relationships with caregiver, physical health, mental health, emotional status, social life experiences, impact on daily life, overcoming challenges and coping mechanisms, outcomes of the caregiving role, and recommendations to new caregivers. Besides, this study found positive relationships, emotional resilience, personal fulfillment, comprehensive and structured care, etc. Conclusion: This research emphasizes the necessity for heightened focus and support for familial caregivers of cognitive impairments, particularly within the South Asian context. Keywords: Dementia, Family caregiver, Experience, Alzheimer's disease.