Peer Support Experiences among Individuals with Spinal Cord Injury: A Qualitative Study

Abstract

Background: Long-term challenges associated with SCI significantly affect an individual's physical, emotional, and social well-being. In Bangladesh, people with SCI often encounter additional difficulties due to inadequate rehabilitation services, limited healthcare resources, and social stigma. Peer support, which involves receiving guidance and sharing experiences with others in similar situations, has been shown to enhance resilience, promote social inclusion, and help develop practical skills. However, the complex nature of peer support experiences in Bangladesh remains largely unrecognized. Therefore, this study aims to illuminate the experiences of peer support among individuals with SCI. Aim: The study aimed to explore the peer support experiences of individuals with SCI. Methods: A qualitative phenomenological approach was employed to explore the lived experiences of peer support among individuals with SCI. Nine participants were purposefully selected from both inpatient and community settings. Data was collected through face-to-face semi-structured interviews using a self-developed interview guide. The data were analyzed using thematic analysis. Results: Seven themes that emerged from the data analysis of this study included: i) Meaning of peer support, ii) Barriers to peer support, iii) Peer support as a pathway to social inclusion, iv) Emotional impact of peer support, v) Role of peer support in rehabilitation, vi) Peer support as a source of inspiration, vii) Recommendations for improving peer support. Participants emphasized how peer support improved emotional health, lessened feelings of loneliness, and promoted the development of valuable skills. Nonetheless, issues such as health restrictions, logistical difficulties, and poorly designed programs were identified, highlighting the need for targeted interventions and enhanced peer support networks. Conclusion: Peer support offers a unique blend of social integration, emotional connection, and practical empowerment, making it a vital component of the recovery process for individuals with SCI. By bridging the gap between lived experience and professional care, it promotes independence and resilience. However, enduring health limitations, logistical obstacles, and inadequate program frameworks necessitate creative solutions. This research highlights the transformative potential of peer support in reshaping rehabilitation and enhancing the quality of life for individuals navigating the complexities of SCI recovery by leveraging technology-enabled solutions, customized training, and structured interventions. Keywords: Spinal Cord Injury, Peer Support, Rehabilitation, Emotional well-being, Social inclusion, Intervention