Quality of life of mothers of children with cerebral palsy

Abstract

Abstract

Cerebral palsy is one of the most common congenital disorders of childhood. That affects muscle tone, movement, and motor skills. And that’s why they are dependent on their family, and the family especially the mother take the responsibilities to take care of the children with lot of stresses. And this condition decrease the quality of life of mother. Purpose: Identify the quality of life of mothers of children with cerebral palsy. Objectives: To identify the lifestyle of mothers of children with cerebral palsy. Methodology: Here use the cross sectional study method with 120 participants of mothers with their CP children. In additionally identify the quality of life of mothers of children with cerebral palsy. Results: Data was analysed by using SPSS version 20. Microsoft Excel Work 2013. A total 120 participant of mothers with cerebral palsy children. Here minimum age of the mothers was 14 years and maximum age was 37 years. Among that the mean age of the mothers was 21.40 years and SD was 4.410. Among 120 participant mothers, most of them (40.80%) was completed secondary education level. All the 120 participants, 19.20% (n=23) got marriage with their cousin and 80.80% (n=97) was not. Among 120 participants, 9.20% (n=11) had more than one disable children and 90.80% (n=109) were not. Quality of life of mothers was detected by a questionnaire SF36 and there was 8 dimensions, from these dimensions the mean score of physical functioning was 51.21%, Role limitation due to physical health was 64.27%, Role limitation due to emotional problem was 62.15%, Energy or fatigue was 47.55%, Emotional well-being was 55.29%, Social functioning was 92.60%, Pain was 87.54%, and lastly general health was 46.29%.And functional level of children was detected by GMFCS score and maximum children was at level II(44%) and minimum was at level V(13%).The results was actually based on SF36 score of mothers & GMFCS level of the children. Here mainly access the quality of life of mothers. Conclusion: It was true that QoL of mothers was not very good with CP children, but there was no relation between functional limitations of CP children with their mothers QoL. Therefore, to increase QoL of mothers should be motivated them to join social activities related to their interests, and also care their own health. Mothers with depressive symptoms should be psychologically supported. Keywords: Cerebral Palsy, Quality of life of mother, SF36, GMFCS.