Abstract:
Introduction: Cerebral palsy is a non-progressive irreversible lesion either single or multiple areas of the immature brain due to a developmental abnormality of brain or injury of the brain during labor, at the time of birth or during delivery. The incidence of cerebral palsy all over the world is 3-4/1000 live births. The prevalence of cerebral palsy is 2.5% per one thousand live births. Children with cerebral palsy required rehabilitation care both at home and rehabilitation center, in this situation Mothers of children with cerebral palsy are usually the primary caregivers of their children, The study aims to find out the factors affecting adherence to physiotherapy appointment for caregivers of children with cerebral palsy in Bangladesh. Methodology: A crosssectional study. Sample size: A total of 225 attendances with the cerebral palsy child, Data was collected from the 14 PSOSK at different district of the Bangladesh such as Rajbari, Jessore, Comilla, Sylhet, Khulna, Pabna, Magura, Pirgong, rangpur, Ghoraghat Dinajpur, Barguna, Rupsha Khulna, Nawgaon, Dinajpur and Jattarabari. Sampling procedure: convenience sampling techniques were used for this study. Data collection tools: Data were collected using a questionnaire consisting of closed structured question through face to face interviews. This data collection procedure was completed within one month. There were used Bengali questionnaires with simple wording because all the parents have understood better in Bengali. SPSS (version=23) software was used for statistical analysis of data and the significant level set at p<0.05. Result: shows that Among the 225 CP child only 33.8% maintain adherence and 66.2% was non-adherence. The chi-square test in this study showed statistically significant association observed in different variables such as numbers of siblings, required doctors consultation of the CP children, parents level of education and their awareness level of the disease and therapy, mother health condition and also family members and having any savings have a significant association with adherence (P < 0.005). Conclusion: Adherence to the caregiver of the cerebral palsy child with physiotherapy appointment is out most important for better management. In this study, it is suggested that the quality of life of the CP child is significantly changed by physiotherapy as well as rehabilitation. The results will be useful in developing effective interventions aimed at enhancing the utilization of services and adherence to the treatment.
KEYWORDS: Cerebral palsy, Caregivers, Adherence, Non-adherence
Description:
This thesis is submitted in partial fulfillment of the requirements for the Degree of Master of Science in Physiotherapy 2019, Bangladesh Health Professions Institute, Faculty of Medicine, the University of Dhaka, Bangladesh: