Activity and Participation in Children and Youth with Cerebral Palsy based on International Classification of Functioning, Disability, and Health Core Sets of Children & Youth with Cerebral Palsy

Abstract

Purpose: The aim of the study was to determine the level of activity and participation in children and youth with cerebral palsy (CP) based on International Classification of Functioning, Disability, and Health Core Sets Children and Youth with CP. Objectives: To identify and analyse possible factors as well as their association in activity and participation level in children and youth with cerebral palsy. Methodology: A crosssectional descriptive study design was carried out to find the level of activity and participation among 232 children with cerebral palsy. Activity and participation level were expressed as descriptive (frequency, mean and proportion) and bivariate (χ2 and Spear-man rank test) were carried out. A p value of less than 0.05 was considered significant. Factors that may affect the activity and participation level in children and youth with CP identified as age, Gender, siblings, father’s occupation, type of CP involvement of limbs, type of CP involvement of muscle tone. Results: Data was analyzed by using SPSS version 20 and data were calculated as frequency, percentages and presented them using a table and figure. In addition, data was cross tabulated with various factors against activity and participation (Modified ICF Core Sets CY with CP). A total of 232 participants with cerebral palsy minimum age group of children were 04 years and maximum age was 18 years. Mean (SD) age of the participants was 8.85 (±2.95) years and male ratio 59% and female ratio 41%. Most of the father doing jobs 49.1% (n=114) at different level and second most common were doing business 28.9% (n=67). 38.8% (n=90) have single sibling, 35.8% (n=83) have two or more siblings. belongs to the Chattogram, rest of the participants 6% (n=14), 1.7% (n=4), 5.2% (n=12), 3.4 majority of the participants 63% (n=146) belongs to the Dhaka division, while 16.4% (n=143) % (n=8), 4.3% (n=10), 1.3% (n=3) from Rajshahi, Khulna, Barishal, Mymenshingh, Rangpur and Sylhet. 79.7% (n=185) had spastic tone, 12.9% (n=30) had athetoid tone, 3.4% (n=8) had ataxic tone and 3.9% (n=9) had mixed type of CP respectively. Cross tabulation between type of CP (involvement of muscle tone) and gender in which out of 137 male 47.4% (n=110) were spastic type of CP. Maximum children with CP had 48.7% (n=113) were diplegic then 33.2% (n=77) were quadriplegic, 6% (n=14) were Monoplegic, 4.7% (n=11) were triplegic, and finally 7.3% (n=17) were Abstract vii

hemiplegic. Cross tabulation between different type of CP (involvement of muscle tone and involvement of limb) found that 45.3% (n=105) were spastic diaplegic, second most participants 19% (n=44) were spastic quadriplegic and others had different type of CP. Spearman correlation coefficient for the correlation between Age of children with CP and activity and participation level in which participant to focusing attention (r= -.165, p= .05) is more correlated than second most correlated coefficient were problem solving by patient (r= -.159, p=.05) and family relation (r= -.159, p=.05). Communicating with receiving spoken message (r= -.134, p=.05) has less correlation with age. In the same way gender of children and youth with CP and school education (rs= -.241, p=.05) than second most correlated coefficient was complex interpersonal interaction (rs = -.197, p=.01) and basic interpersonal relation as well as recreation and leisure has less correlation such as (rs = -.158, p=.01) and (rs = -.154, p=.01) respectively so all of the correlation were significant. Conclusion: Study suggest that ICF core sets CY-CP can use in rehabilitation sector as an assessment tool which describing functional ability of the children and youth with CP.