Carers’ views on practicing home program based on towards on inclusive world: a guidebook for the parents of children with cerebral palsy

Abstract

Background: Cerebral Palsy (CP) is most common disability among the children in Bangladesh. Parents are play as carer to this child with CP. For better improvement Centre for the Rehabilitation of Paralysed (CRP) provide a guidebook to carer who take two week of inpatient rehabilitation service. Because this book helps the carer to practice home program (HP) easily with their child. This study was focused to explore the carer view of practicing HP with their child with CP by following the guidebook. Objective: Objectives of the study were to find out the carer knowledge about the practicing the “Towards on Inclusive World- A guidebook for the parents of children with cerebral palsy”, to identify the facilitators to implement this guidebook for the carer, to find out the challenges to implement this guidebook at home for the carer, to find out the carers’ opinion and recommendation about the guidebook. Methodology: The study was conducted by using qualitative thematic analysis method. Purposive sampling was used for selecting participants. Data was collected by using face to face interview with a semi structured question, data was analyzed by using thematic analysis. Result and discussion: After analyzing data, it was found that carer have enough intelligence about the guidebook. The clear information help carer to participate in HP comfortably. Sometimes carer face difficulties to implement HP because they have less family support and lacking of therapeutic equipment. Carer are satisfied with this book and get benefit at the time of practicing. Carer recommendation to upgrade information that will be more helpful for them. Conclusion: Rehabilitation process is more effective when carer participate HP regularly with their child with CP. “Towards on Inclusive World- A guidebook for the parents of children with cerebral palsy” has different home guidance for CP carer. Carer are aware about the guidebook and they get help from the book with satisfaction to implement HP. Child need variation on HP with their ages. So, it is necessary to include monitoring and educate the carer about the book with update HP in therapy session. Key words: Cerebral palsy. Home program. Carer participation