Family caregivers’ experience during caregiving persons with post-stroke cognitive deficits: a qualitative study

Abstract

Background: Stroke survivors frequently experience cognitive problems. Stroke survivors and their family caregivers are both impacted by cognitive issues and implement practical solutions to them. There is very little research about the caregivers' experience of stroke survivors with cognitive deficits, especially in the South Asian context. This study aims to explore caregivers' experiences while caring for individuals with post-stroke cognitive deficits. Methods: This study was designed using a qualitative, phenomenological approach. Participants were recruited through the Patient Details Management System of a rehabilitation centre. The study employed a qualitative research design to gather data from six family caregivers of individuals with post-stroke cognitive deficits. The data collection method involved conducting in-depth face-to-face interviews using semi-structured interview guidelines and field notes. The determination of the sample size was based on achieving data saturation. The study employed audio-recording techniques to capture first-person narratives in Bangla, which were transcribed and translated into English. The interview transcripts were returned to the participants for verification of the accuracy of their statements as reflected in the transcripts. The present study integrated thematic analysis, utilizing Braun and Clark's six-step approach. Results: Six people between 18 and 65 were questioned; three were men, and the other three were women. The aforementioned qualitative investigation explores significant perspectives regarding the encounters of familial caregivers tasked with Abstract providing care for individuals who have suffered from strokes and are experiencing cognitive impairments. Five overreaching themes were found: (i) Day-to-day Experience, (ii) Physical Impact, (iii) Emotional Health, (iv) Overcoming Obstacles and Adopting New Approaches, and (v) Lessons Learned through Providing care. Conclusions: This research emphasizes the necessity for heightened focus and assistance for familial caregivers in the realm of cognitive impairments following a stroke, particularly within the South Asian context, where there exists a shortage of investigation in this area. By gaining a greater understanding of caregivers' experiences, healthcare practitioners can develop more empathetic and efficacious interventions to foster the well-being of stroke survivors and their caregivers. This study could enhance the quality of care and support services offered to people with post-stroke cognitive impairments and their families. Keywords: Post-stroke Cognitive Deficits, Emotional Solace, Family Caregiver, Day to day experience, Providing care