“Socioeconomic impact on the parents of congenital talipes equinovarus (CTEV) children along with their coping strategies during ponseti management at CRP”

Abstract

Purpose:To find out the socioeconomic impact on the parents of Congenital Talipes Equinovarus (CTEV) children along with their coping strategies during Ponseti management at CRP.Objectives:The goal of this study was todetermine the sociodemographic factors and economic factors affecting parents of children with CTEV undergoing Ponseti management as well as the coping strategies factors affecting parents of children with CTEV undergoing Ponseti management. Methodology:The study design was cross-sectional. A totalof164samples were selected conveniently for this studyfrom the Centre for the Rehabilitation of the Paralyzed(CRP), Paediatricunit(outdoor),Savar, Dhaka. Data was collected by using of questionnaire and socioeconomic impactand coping strategies were assessed by the Impact-on-Family Scaleand Brief-COPEquestionnaire. The study was conducted by using quantitative descriptive analysis through using SPSS software 25.0 version. Results:Among 164 parents of CTEV children, 12.2% (n=20) of parents strongly agreed and 57.9% (n=95) of parents agreed that Ponsetimanagement causes a financial burden on them. On the contrary, 28% (n=46) of parents disagreed and 1.8% (n=3) of parents strongly disagreed that Ponseti management causes a financial burden on them.The most used coping strategy is that of religion followed by acceptance, emotional support, informational supportandpositive reframing which are categorized as being in the approach of coping. While the least used coping strategy ishumor followed bysubstance use,behavioral disengagementand self-blame. This indicates that approach coping is the most used coping strategy than avoidant coping of the parents of CTEV children. Conclusion:In Bangladesh, most of the parents were experiencing financial burdens during Ponseti management though it is a low-cost treatment for CTEV. As most of the parents of CTEV children come from rural areas, travel expenses havea negative impact on them. The education level of CTEV children's parents and social and cultural aspects regarding CTEV children can influence the copingstrategies of the parents of CTEV children. Key words:Socioeconomic impact, Coping Strategies,CTEV children